tag:blogger.com,1999:blog-13662248.post7482168833225365364..comments2023-07-15T06:13:02.793-04:00Comments on Clare's Journey: Revolving DoorTeresahttp://www.blogger.com/profile/17124417518702502677noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-13662248.post-27562897297005442722007-07-29T00:47:00.000-04:002007-07-29T00:47:00.000-04:00It's exhausting. And it will be for many years... ...It's exhausting. And it will be for many years... it seems completely unfair and I completely understand where you are coming from. You are an amazing mother and have strength I don't see very often. You have a lot on your plate, and the fact that you haven't ripped all your hair out is amazing! :) I haven't had to deal with the medical issues you have with Clare, and I know that adding anything else to a full cup will only make it tip over. <BR/><BR/>Having said that,in my opinion, I think you should think about adding the therapies. If you add and you don't see any benefits in these next three months, then you have something to talk about with Mervis in Nov. I know I do a lot of what my docs say - Brady at 21 mos has PT 2x a week, OT 2x a week, Speech 1x a week - and Dr Mervis suggested adding more PT/OT... so guess what! Starting in Aug we are doing PT 3x a week plus getting an Educator 1x a week on top of everything else. I am following Dr Mervis' advice because of what my friend, a pedi nurse, said when Brady started Early Intervention at 4 mos old - his quality of life will be different because we got him in so young. <BR/><BR/>I think these kids will need breaks here and there - and so will we!!! -- but in my world, reality is that Brady is not talking, walking or eating great either for that matter. Clare was far more advanced that Brady is at his age.<BR/><BR/>I am all up for getting double pedicures and eat some really bad-for-you chocolate cake somewhere in the middle - just let me know :)Kerryhttps://www.blogger.com/profile/16351269886862492620noreply@blogger.comtag:blogger.com,1999:blog-13662248.post-72382641685179622802007-07-26T22:25:00.000-04:002007-07-26T22:25:00.000-04:00Teresa - WOW, what a deep blog this is. I believe ...Teresa - WOW, what a deep blog this is. I believe with all of my heart that you are the most wonderful Mother God could have ever chosen - yes, you were chosen! You are doing a fabulous job now, and I know you and Shawn (wherever he is..hahaha) will make wise decisions that may affect everything you are. Clare is wonderful, looks like any other 2 year old. Sure there are obstacles, but she is doing well - thanks to you! Keep your chin up, enjoy those quiet times, and look for the rainbows! I Love You all, Aunt JoanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-13662248.post-37492034992099645502007-07-26T21:52:00.000-04:002007-07-26T21:52:00.000-04:00If I could have a sister I would want her to be li...If I could have a sister I would want her to be like Christina. How lucky you are to have such a warm and caring family. <BR/><BR/>I wish I lived closer to you. I would love to watch Jamie and Clare so you and Simon could have a whole day together, just the two of you. <BR/><BR/>Hang in there:)Ava's Grandma Kimhttps://www.blogger.com/profile/04277556116243441427noreply@blogger.comtag:blogger.com,1999:blog-13662248.post-72241121144741588772007-07-26T21:38:00.000-04:002007-07-26T21:38:00.000-04:00I thought that beautiful Clare made me cry?? Wow ...I thought that beautiful Clare made me cry?? Wow - now I realize that my amazingly beautiful sister makes me cry more... and I know that you know all of this, Tree, but let me just say it - you are this awesome, awe-inspiring Mom to Jamie, Clare, and Simon. You are a fun and loving and caring Mom. You are providing your children this warm environment like we had as kids - this lifestyle that they will always appreciate and cherish. You are a Mom that I want to be like. You are MORE than adequate, not only because of who you are as a person, but also because of the strength that God gives to you. He knows this Plan - he designed this Plan for your family. And it is beautiful, and so are you.Christina and Tee Jayhttps://www.blogger.com/profile/00335391191852486001noreply@blogger.comtag:blogger.com,1999:blog-13662248.post-15588312004082361152007-07-26T20:51:00.000-04:002007-07-26T20:51:00.000-04:00I think Dr. Mervis sounds wonderful. I wish she wa...I think Dr. Mervis sounds wonderful. I wish she was closer. <BR/><BR/>Don't feel guilty about anything...just be open to suggestions and, most of all, don't beat yourself up. <BR/><BR/>It's okay to vent too. As for not worrying about the future, it's pretty hard not to worry sometimes. We all do it. After all, isn't that what we are preparing for with all of these flipping therapy sessions? It's bound to cross your mind from time to time, and it's scary. But I'm hoping it's going to be oh so good for all of us. I still have so much hope!Nancyhttps://www.blogger.com/profile/15752344076797977728noreply@blogger.comtag:blogger.com,1999:blog-13662248.post-62978883172096240992007-07-26T16:28:00.000-04:002007-07-26T16:28:00.000-04:00Thank you for sharing with us. I have walked in si...Thank you for sharing with us. I have walked in similar shoes...and I'm sure I will walk in them again in the not so near future. It is so hard to pick yourself up when you are thrown as much as you have been to juggle.The medical stuff in itself is so overwhelming..then you add therapies and other children and somedays it is better not to think about it. But we all know it is something you have to think about.<BR/>Like Amy said, you have to do what is best for your family. It is a learning process that throws you curves all the time.<BR/>As for the neuro..I feel for you. We saw them too. He established a base line and said we would meet again someday when we needed him.Thankfully that day hasn't come yet. I'm not sure who is worse to see the cardio or the neuro...it's a toss up...both are VERY important areas of the body. Here's to hoping you don't have to add him to the list of drs to see!!! <BR/>NoelNoelhttps://www.blogger.com/profile/14277546803977737835noreply@blogger.comtag:blogger.com,1999:blog-13662248.post-76415243274566937012007-07-26T09:18:00.000-04:002007-07-26T09:18:00.000-04:00Sweetie, you shouldn't worry about the future so m...Sweetie, you shouldn't worry about the future so much! Possibilites are abound and you cannot predict 2 decades down the road. Also shrug off the guilt, listen to Dr. Mervis and move on. You shouldn't feel guilty, how are you to know what is best for Clare ALL OF THE TIME. Listen to the experts, and decide what is best for your family. Ugh. sorry about the neuro consult. Keep up the excellent work! You are only one person and doing the job of 5.<BR/>xoxo<BR/>amyAmyhttps://www.blogger.com/profile/17516817466844602132noreply@blogger.comtag:blogger.com,1999:blog-13662248.post-43036583250088585252007-07-25T23:16:00.000-04:002007-07-25T23:16:00.000-04:00"Revolving Door", thats a good way of describing i..."Revolving Door", thats a good way of describing it.<BR/>I dont like to think about the future too much, it just worries me - i sometimes think if we had spent all the time we were pregnant worried that our child would be unhealthy then we would have missed out on enjoying the time we had our babies growing inside us. Life is a bit the same i guess if we spend all of our childrens lives worrying about them then we will miss the time we do have to enjoy them. <BR/>Pah. Thats alot easier said than done. <BR/>As for therepy, i guess as hard and slow process it is, now is the most crucial time to act and it may just prevent an even longer detour in the road...<BR/><BR/>xxooKatiehttps://www.blogger.com/profile/08591859777209767308noreply@blogger.com