Home Again

We arrived home with Clare this afternoon a little after 2pm. She has been in great spirits, but still has the rash all over her body which is now itching. She is like a little bear all over the house - rubbing her back up and down on the carpet, shifting from side to side in her chair at dinner, sticking her hand down her pull-up - all in the attempt to calm that furious itch! Before we left Children's today, I talked with a doctor from the anesthesiology department. They are going to flag Clare's file and compare the medications used in her anesthesia from this visit against her past visits and determine if they used anything new. The consensus is that Clare is having an allergic reaction to one of the anesthesia meds. She also spiked another fever this afternoon, which the cardiologist feels is just a reaction to the glue, being an artificial substance in her body. So we filled her up with Tylenol and Benadryl and put her to bed. We are all ready for a good night's sleep. Thank you again to everyone for all their prayers and well-wishes! We all made it through another one.