Clare's Journey

Our daughter, Clare, was diagnosed with Williams Syndrome when she was 6 weeks old. This is a rare genetic condition that causes heart defects, developmental delays, and many other conditions. We were shocked and upset by the diagnosis and are overwhelmed with many emotions. I set up this journal to share Clare's story and our story - as therapy for me (the mom!) when the times get rough, to share Clare's accomplishments and triumphs with those we love, and, maybe in the future, to give hope to another set of parents whose child has been diagnosed with Williams Syndrome.