Thursday, July 31, 2008

Clare Bear

Clare has one week left of her preschool summer session. She loves school (can I say it enough?). We had one day where she was reluctant to go in, and that was Auntie Erin's first day with us. (She was afraid she was going to miss out on a whole lot of fun while in school!) Her vocabulary and sentence formation continues to explode. When we wrote her IEP for the 2008-2009 school year, one of Clare's goals was to make 4-5 word sentences. Even though this goal was written for September's IEP, Clare has not only started coming out with sentences that long, but she strings sentences together and has even started having little conversations with us. She stills slurs her consonants together, though, so a good portion of her speech remains unintelligible. Every day, we pick up more and more of what she is saying, but an outsider would probably still have a tough time. Right now, she only receives group speech therapy at school, but if we do not see any improvement in her enunciation, then we are going to look into getting some one-on-one speech as well.

Clare's teacher told me this morning that "Clare is becoming comfortable in school" to the point that she is very "chatty" in circle time. Her teacher laughed about it and said it was so cute, but, being the parent, I was more concerned that Clare was behaving herself! I was assured that Clare did listen when she was told to stop talking or given other directions. Of course, I think it's cute that Clare is chatty, but I don't want her to be a disruption either! All the teachers in Clare's classroom just love her. (What's not to love, right?)

In medical news, Clare has her next echo scheduled in September. When that appointment comes, it will have been six months since her last echo! We think she's doing fine because her energy level has been great, her eating is going well, and she looks beautiful, but I still have trouble waiting to find out what's going on in her heart. Clare's eating has been going so well that we cut out her appetite stimulant a couple months ago and have noticed no change in the quantity that she eats. We also cancelled our next appointment with the feeding team since skill-wise, she can eat almost anything (except meat - she still has a tough time chewing meat). Her biggest challenge remains her pickiness. Top foods on Clare's list - toaster strudels, poptarts, cheese puffs, and cheese and crackers. She has made strides in school with eating creamy textures, such as yogurt and pudding. But no luck when it comes to fruit or vegetables. Bananas remain her fruit of choice. We notice that she definitely still leans towards foods that do not require much chewing. And she has graduated from M&M's to the finer chocolate - mainly Dove. She is not satisfied when we offer her M&M's anymore - she tells us sternly, "No, chocolate. I want chocolate." A chocolate connoisseur at the age of three.

Other than a bad double ear infection a month ago, Clare has been doctor-free this summer. It has been so nice! With fall, comes a slew of appointments, but for now, we are gearing up to enjoy the last month of summer. I cannot believe it is almost August. Wow!


Ava's Grandma Kim said...

Clare is simply beautiful! I am so proud of her progress. I remember sitting at my desk at work crying about Clare's heart--it seems so good to hear about her MUCH better health. Give her a kiss & hug for me!

Auntie Becky said...

Yea Clare!!! All little girls are chatty...the fun begins. I must say though, fruits & veggies / chocolate, I think the chocolate wins out here too, and Dove chocolate, now there's a girl after my own heart! Love ya guys. Talk to you soon. Hugs and Kisses!!
Love ya
Auntie Becky

Tes said...

"chatty" reminds me of our PT using the word "laidback" for Lila's stubborness with PT way back when, these girls are smarter then the average bear! get it? bear, clare bear, ok i will stop. I just have to say she is one cutie patootie. On the eating, do you have the Deceptively Delicious cook book? I am trying some recipes from there this weekend. It is the one by Jerry Sienfield's wife, she hide veggies in tasty kid friendly foods.
take care

Aunt Joan said...

What a cutie-pie!! I am so excitied that she has been (relatively) event-free for so long now. I have to agree, too, that chocolate would win out any day over fruits & veggies for me!! I believe that this coming school year will be wonderful for her! GO, CLARE!! love, Aunt Joan

Katie said...

Clare is doing so incredibly well, she has grown into such a beautiful young girl, give her a big hug for me and tell her i am proud of her :)